Health Insights

FAP and Your Heart

If you have familial amyloid polyneuropathy (FAP), a progressive neurodegenerative disease, your doctor has probably talked to you about screening for problems with your heart. About 80% of FAP patients have cardiac involvement. If left untreated, heart disease can have serious consequences for your health. What causes heart problems…

FAP and Your Eyes

Familial amyloid polyneuropathy (FAP) is a disorder in which abnormal clumps of proteins called TTR amyloids accumulate in tissues and organs, interfering with their function. The aqueous humor of the eyes is one place where TTR amyloids accumulate. This is the jellylike substance that makes up most…

Keeping a Food Diary When You Have FAP

If you have familial amyloid polyneuropathy (FAP), a healthy diet may help delay the onset and slow the progression of the disease. To keep track of what you’re consuming, a food diary can help. What is a food diary? A food diary is a daily log of…

FAP and Diet

Environmental factors such as diet may help delay the onset and slow the progression of familial amyloid polyneuropathy (FAP). Following are some dietary suggestions you may want to consider. But be sure to discuss with your primary physician before making any changes to your diet. Increase hydration FAP is…

Mindfulness for FAP Patients

Symptoms of chronic disorders such as familial amyloid polyneuropathy (FAP) can present multiple challenges to everyday life. One tool that may help you cope is mindfulness. What is mindfulness? Mindfulness is the practice of being constantly aware of your thoughts, feelings, sensations, and environment. Rather than constantly…

Clinical Trials for FAP

Finding new treatments for rare diseases such as familial amyloid polyneuropathy (FAP) is challenging. One way that patients can help with developing and evaluating new treatments is by participating in clinical trials. What are clinical trials? Clinical trials allow researchers and physicians to test new devices, medications,…

The Spoon Theory for FAP Patients

Being diagnosed with a genetic disease during adulthood can be a life-changing event. Between managing your symptoms and addressing the challenges that the disease poses to you and your family and friends, you may be overwhelmed both physically and emotionally. A practice called the spoon theory may help you…