Updates
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Therapy Dogs Offer Benefits for Neuropathy Patients
Pets can provide companionship and help with basic tasks to neuropathy patients and their caregivers. For familial amyloid polyneuropathy patients, dogs can complement the ... Read more -
Protein Modification May Lead to Heart Problems in FAP by Promoting Aggregation of Mutant TTR, Study Says
The addition of the amino acid homocysteine to the mutated transthyretin (TTR) protein found in patients with familial amyloid polyneuropathy may contribute to heart ... Read more -
Starting an Exercise Routine While Managing Peripheral Neuropathy Symptoms
For people who have peripheral neuropathy symptoms associated with familial amyloid polyneuropathy, self-care may become increasingly difficult as nerve pain gradually worsens. As caregivers, ... Read more -
Study Describes Characteristics of Autonomic Symptoms in Hereditary Amyloidosis
Autonomic symptoms are common among patients with hereditary ATTR amyloidosis, usually accompany the progression of peripheral neuropathy, and are more prevalent in carriers of ... Read more -
What Patients Should Know About CBD for Peripheral Neuropathy
The pain associated with peripheral neuropathy symptoms makes everyday life difficult for patients. And the medication needed to treat the underlying physical symptoms of familial ... Read more
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Angel loved growing up in a big, close-knit family, surrounded by cousins, aunts and ...
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Early Childhood Onset of FAP Described in Korean Teenager
The case of a 17-year-old boy who experienced the first symptoms of familial amyloid ... -
Vyndaqel Likely to Treat FAP Linked to Mutation Common in Asians, Lab Study Suggests
Vyndaqel (tafamidis) increases the stability of the transthyretin protein and may help people with familial ... -
Gastroenterologists Should Be Part of Multidisciplinary Team to Treat FAP, Study Suggests
As early detection and management of gastrointestinal (GI) disturbances is key in familial amyloid ... -
How Caregivers and Patients Can Manage Bodily Responses to Stress
Anxiety is a common response to an increasingly demanding society and work culture. We ... -
How to Manage Neuropathy Symptoms While Traveling
For caregivers of patients with familial amyloid polyneuropathy, a great deal of planning is ...
Tafamidis Delays Disease Progression in Patients with Transthyretin Amyloid Polyneuropathy, Pfizer Study Suggests
News
An interim analysis of the Phase 3 trial for tafamidis (Fx-1006A) as a therapy for patients with hereditary transthyretin amyloid polyneuropathy (TTR-FAP) shows the investigational treatment delays disease progression, Pfizer announced. The study, “Long-term safety and efficacy of tafamidis for ... Read more