Updates
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How to Manage Neuropathy Symptoms While Traveling
For caregivers of patients with familial amyloid polyneuropathy, a great deal of planning is needed to ensure that local and long-distance travel is manageable. ... Read more -
Noninvasive Imaging Techniques May Help Identify, Monitor Eye Problems in FAP, Study Shows
Noninvasive imaging techniques may be helpful for identifying and monitoring eye problems in familial amyloid polyneuropathy (FAP), a study shows. Titled “Multimodal retinal imaging ... Read more -
How to Manage Peripheral Neuropathy Pain When Interacting with Children
For patients with familial amyloid polyneuropathy, even time spent with family can be physically taxing. As peripheral neuropathy symptoms increase, caregivers need to ensure ... Read more -
Study Supports Genetic Testing for FAP in Neuropathy with No Known Cause
Genetic sequencing can help to diagnose familial amyloid polyneruopathy (FAP) in people diagnosed with neuropathy of unknown origin — and sequencing is more reliable than ... Read more -
NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC
Next month’s annual conference of the National Organization for Rare Disorders (NORD) in Washington, D.C., couldn’t come at a better time, says Marshall Summar, ... Read more
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Angel loved growing up in a big, close-knit family, surrounded by cousins, aunts and ...
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With Football Season Upon Us, Here Are Tips to Enjoy the Big Game
The arrival of fall brings a change in temperature, schedule, and pace. As schools ... -
Urinary and Sexual Dysfunction Prevalent in FAP Patients, Review Finds
Urinary and sexual problems are highly prevalent in people with familial amyloid polyneuropathy (FAP) ... -
Home Care for Peripheral Neuropathy Foot Pain
The peripheral symptoms associated with familial amyloid polyneuropathy include sensations in the feet that range ... -
AKCEA-TTR-LRx Reduces Levels of TTR in Healthy Volunteers, Phase 1 Trial Shows
Akcea Therapeutics’ next-generation antisense medicine AKCEA-TTR-LRx (ION-682884) — currently in development for the treatment ... -
Responding to Weather Changes When Caring for Neuropathy Patients
Patients with familial amyloid polyneuropathy may find that changes in seasons increase discomfort. Colder ...
Tafamidis Delays Disease Progression in Patients with Transthyretin Amyloid Polyneuropathy, Pfizer Study Suggests
News
An interim analysis of the Phase 3 trial for tafamidis (Fx-1006A) as a therapy for patients with hereditary transthyretin amyloid polyneuropathy (TTR-FAP) shows the investigational treatment delays disease progression, Pfizer announced. The study, “Long-term safety and efficacy of tafamidis for ... Read more