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In This Passageway of Grief, I Also Find Hope

After nine years of being a caregiver to a husband afflicted with hATTR amyloidosis, I can no longer lay claim to having that role. My beloved husband of 27 years, Aubrey, passed away on May 22. Even as I write this, I realize that moving forward, I won’t…

What Time Away From My Husband Taught Me About Love

On April 1, Malaysia’s borders reopened to international travelers following COVID-19-related closures, and I finally had the pleasure of visiting my family who lives there. I hadn’t seen them in more than three years, so after spending two weeks of quality time together, saying goodbye and returning home to…

My Calendar Helps Me Remember Past Medical Events

In my work as a patient advocate for the New Zealand Amyloidosis Patients Association, I occasionally need to assemble content for the awareness projects I’m involved in. Whether it’s a speaking engagement or a mind map diagram for a presentation, I usually highlight setbacks and milestones my husband,…