Columns

“Lots of people want to ride with you in the limo, but what you want is someone who will take the bus with you when the limo breaks down.” — Oprah Winfrey On May 22, I lost my husband, Aubrey, to hereditary ATTR amyloidosis. He was my best…

I lost my husband, Aubrey, on May 22. This period of adapting to him being gone has been somewhat challenging for me. Although I thought I had come to terms with it in the weeks following his death, grief has a knack for swinging back and hitting me…

If you are new to my column, my name is Jaime, and I was a caregiver to my husband, Aubrey, until he passed away on May 22. Aubrey had been diagnosed with hereditary ATTR amyloidosis. For nine years, he fought bravely against a disease that robbed him…

Some time has passed since I lost my husband on May 22. For nine years, Aubrey suffered from hereditary ATTR amyloidosis. Despite the toll of this disease on his body, he stayed positive. My late husband held on to the hope that a treatment or cure would…

After nine years of being a caregiver to a husband afflicted with hATTR amyloidosis, I can no longer lay claim to having that role. My beloved husband of 27 years, Aubrey, passed away on May 22. Even as I write this, I realize that moving forward, I won’t…

I am sitting across from my husband, Aubrey, who’s on his last leg of life with us on earth. When I look at him, I see a man who has come to terms with the finality of his situation, but wishes that his failing body could keep up with…

On April 1, Malaysia’s borders reopened to international travelers following COVID-19-related closures, and I finally had the pleasure of visiting my family who lives there. I hadn’t seen them in more than three years, so after spending two weeks of quality time together, saying goodbye and returning home to…

In my work as a patient advocate for the New Zealand Amyloidosis Patients Association, I occasionally need to assemble content for the awareness projects I’m involved in. Whether it’s a speaking engagement or a mind map diagram for a presentation, I usually highlight setbacks and milestones my husband,…

After almost three years of not seeing my family, I’m finally back in Malaysia to spend some quality time with my father, siblings, and children. More important, I can receive closure after my mother’s passing last May. I’m challenged by the fact that she wasn’t here to hug me upon…

For the first time since my husband, Aubrey, was diagnosed with hereditary ATTR amyloidosis in 2013, his care team brought up the subject of palliative care last week. Was it unexpected? Yes. Were we prepared for this new step? No. Despite the many challenges we have faced, both individually…