Jaime Christmas,  —

Jaime Christmas is a patient advocate and columnist based in Auckland, New Zealand, with her cheeky doggie, Akira. She was a caregiver to a spouse who was afflicted with hATTR amyloidosis. Now she fights for equitable treatment and support for diagnosed patients and their caregivers. Although she now lives without the daily challenges of being a caregiver since her husband’s passing in 2022, she hopes to be still an encourager and listening ear to those presently walking the journey she knows only too well.

Articles by Jaime Christmas

Finding Meaning in Life With a Genetic Disease

My husband Aubrey’s hereditary ATTR amyloidosis journey is included in a forthcoming book titled “Rare Disease Drug Development: Clinical, Scientific, Patient, and Caregiver Perspectives.” He feels very touched that the editor saw fit to reach out to him. Emotional healing occurs when we can provide insight into a…

I’m Embracing Optimism as We Approach the New Year

2021 has been a character-building year for me. I experienced challenges like never before, and I’m not just referring to the ones associated with the COVID-19 pandemic. This year, I suffered the loss of my mother, my beloved pet dog, and my sister-in-law. Just when I thought it couldn’t…

I’ve Experienced 3 Phases of Caregiving

Life experience plays an integral role in shaping our behavior and thinking. I have come a long way from being an unsettled 18-year-old to a wiser and more focused woman in her 50s. Looking back, I see how the ups and downs we face shape our individuality. We are…