Jaime Christmas,  —

Jaime Christmas is a patient advocate and columnist based in Auckland, New Zealand, with her cheeky doggie, Akira. She was a caregiver to a spouse who was afflicted with hATTR amyloidosis. Now she fights for equitable treatment and support for diagnosed patients and their caregivers. Although she now lives without the daily challenges of being a caregiver since her husband’s passing in 2022, she hopes to be still an encourager and listening ear to those presently walking the journey she knows only too well.

Articles by Jaime Christmas

Why Rare Disease Day Matters to the Amyloidosis Community

When I married my husband, Aubrey, I knew a hereditary and life-threatening disease affected some members of his family, but I had little other information about it. We naively carried on with our lives, secretly hoping the disease hadn’t reached his generation. When we learned that several of Aubrey’s first…

The Ups and Downs of Sleeplessness

Has the COVID-19 pandemic been keeping all of us up at night? According to an online forum by the Harvard T.H. Chan School of Public Health reported on by The Harvard Gazette, the pandemic has resulted in a big change to people’s sleeping habits, resulting in insomnia for many.