Sunrise Sunset — Jaime Christmas

As I write this, my husband, Aubrey, is undergoing surgery to remedy his congested nasal passages, which have reduced the oxygen flow into his lungs. It will take about 70 minutes. Turbinate reduction…

Leading an association that supports and advocates for rare disease patients while being a caregiver to one certainly has shaped my outlook on life. To a larger extent, these roles have allowed me to…

One of my greatest accomplishments in life is being a mother to four amazing individuals. I cannot give enough credit to my kids for handling all of the challenges that come with having a…

Neurologist Donn Dexter wrote an article last year for the Mayo Clinic titled “5 tips to keep your brain healthy.” I thought it was a good read, as it reinforced the importance…

A few days ago, I had the honor of presenting at this year’s Patients as Partners Europe virtual conference, an industry forum centered on exchanging ideas about how to more readily provide therapeutics…

Earlier today, I had the privilege of listening to a fellow carer share the mental, emotional, and physical trials she experienced while supporting her late husband, who was afflicted with hereditary amyloidosis…

It is a summer morning here in New Zealand. As I write this, a cool, gentle breeze blows through the house, and I am being serenaded by a symphony of native backyard birds. In…

Sleep is an essential part of life that comes so naturally, from the moment we come into being. Yet sometimes we forget the impact that too much or too little sleep can have on…

I can hear the shower going upstairs as I sit at my writing desk in my downstairs office. It is funny how the sound of running water always makes me feel a little melancholic…

2020 is almost at an end. In a few weeks, we will celebrate the holiday season, and before we know it, 2021 will be upon us. The past year was mostly filled with bad…

“Surprise!” I watched familiar faces filter into the room where I stood stunned, not expecting the birthday event that was unfolding before me. I turn 50 tomorrow, and some close friends went to the…

I feel the coolness of the glass against my forehead. The shower is pelting warmth against my skin, but the water doesn’t feel very soothing today. I am tense as I block out thoughts…