Sunrise Sunset — Jaime Christmas

My husband Aubrey’s hereditary ATTR amyloidosis journey is included in a forthcoming book titled “Rare Disease Drug Development: Clinical, Scientific, Patient, and Caregiver Perspectives.” He feels very touched that the editor saw…

2021 has been a character-building year for me. I experienced challenges like never before, and I’m not just referring to the ones associated with the COVID-19 pandemic. This year, I suffered the loss…

I spent half the morning figuring out our plan for Christmas. In recent years, it’s been a tradition for the whole family — including pets and my children’s partners — to go away for…

This is my 48th column since I began this providential opportunity as a writer at FAP News Today. To be given the platform to share my journey as a caregiver to a husband…

Life experience plays an integral role in shaping our behavior and thinking. I have come a long way from being an unsettled 18-year-old to a wiser and more focused woman in her 50s. Looking…

New Zealand was largely able to avoid the effects of the COVID-19 pandemic, until now. The contagious nature of the delta variant and the high number of cases have placed many people on edge…

My husband, Aubrey, has begun watching cooking videos on YouTube to overcome an aversion to food and eating. We are both from Malaysia, where food and eating are central to everything. Food is…

As we enter the second half of October, I’m not quite sure how the end of the year has arrived so quickly. Time flies while caregiving. I care for my husband, Aubrey, who has…

To all my fellow caregivers, I want you to know that I understand what you are going through, and I am cheering you on. After eight years on this journey with my husband, Aubrey,…

I lost my mother in May. Even as I type those words, I have not fully come to terms with it, as I have yet to receive closure. She passed away in Malaysia while…

If you are a longtime caregiver for a loved one with hereditary ATTR amyloidosis, you are probably knowledgeable about the condition. My name is Jaime, and I have been a caregiver to my…

I look for humor in every situation. Humor can be lifesaving in times of despair. U.S. Congregational minister Henry Ward Beecher said, “A person without a sense of humor is like a wagon…