Life is full of twists and turns. I was a caregiver for nine years until this past May, when my husband passed away from hereditary ATTR amyloidosis. Aubrey was diagnosed in 2013, and despite the many challenges we both faced, we never once thought to give up. Unfortunately,…
Every so often, my husband, Aubrey, and I go through this exercise where we evaluate our circumstances in life and decide if we should shake things up a bit. Since the pandemic‘s start, we both have been challenged, not only by its hampering our movement and autonomy, but also…
I recently accompanied my husband, Aubrey, to an appointment with a specialist at the hospital and noticed a sign taped to the wall in the waiting room. It was a word cloud graphic highlighting the practices that healthcare practitioners strive for to create a good experience for patients. As I…
Lunar New Year celebrations, which began on Feb. 1, last for 15 days. As I write this on the eve of that date, I am busy cooking a selection of traditional dishes for the family to enjoy. Because we live in New Zealand, a Western country far away from family…
I will always remember May 12 as a special day. That’s because last week, I spent that day with my daughter doing something close to our hearts. We woke up that morning and prepared a sign to represent our amyloidosis patient association here in New Zealand. We attended a…