Sunrise Sunset — Jaime Christmas

I recently had the pleasure of attending an Amyloidosis Alliance conference in Madrid, which brought together advocates from around the world who serve the transthyretin amyloidosis community. This includes the…

It has been 17 months since my husband, Aubrey, passed away due to complications of hereditary ATTR amyloidosis. Following his diagnosis in 2013, Aubrey’s journey was wrought with many untold challenges.

On Sunday, March 19, I appeared on New Zealand’s 1News to discuss my journey as a caregiver to my late husband, Aubrey, who had hereditary ATTR amyloidosis. I now face the reality…

This column has been a year in the making. When my late husband, Aubrey, passed away in May 2022 from hereditary ATTR amyloidosis, I couldn’t articulate my thoughts and feelings to paper…

In the blink of an eye, we’re already approaching the third month of 2023. For me, the ushering in of a new year came with poignancy and a new aspiration to do better as…

I have previously written about the importance of staying positive despite our circumstances. Whether you are a patient or a caregiver to a loved one with a chronic illness, keeping yourself above…

This column will be my 94th since starting “Sunrise, Sunset.” My caregiving experience has taken me through many ups and downs and countless joys and heartbreaks. I’ve had to reset and reestablish…

Late last week, to drive disease awareness, I took to the streets in downtown Auckland, New Zealand, and asked random people if they had heard of amyloidosis. None of the 15 strangers who…

It’s been over four months since I lost my husband, Aubrey, to hereditary ATTR amyloidosis. The vacuum he’s left behind in the lives of our four children and me may not be…

Life is full of twists and turns. I was a caregiver for nine years until this past May, when my husband passed away from hereditary ATTR amyloidosis. Aubrey was diagnosed in 2013,…

I recently attended an amyloidosis scientific conference in Heidelberg, Germany, that was a productive and empowering experience. As a former caregiver to a spouse with hereditary ATTR amyloidosis and a patient advocate…

Two weeks after the passing of my husband, Aubrey, my four children decided that the company of a new puppy would be the best way to cheer me up.