Ezekiel is caregiver to his mother-in-law, who has familial amyloid polyneuropathy. He holds a bachelor’s degree in strategic and organizational communications from Temple University and currently lives in Philadelphia, Pennsylvania. When not writing, he’s skateboarding or hanging out with his wife, Maryann.
For neuropathy patients, especially those who have familial amyloid polyneuropathy (FAP), the caregiver may become their arms, legs, eyes, and ears. While that may seem like a daunting task, there’s a benefit: Caregivers experience an emotional side to…
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About a month ago, my father-in-law came down with what seemed like a cold. But his condition gradually worsened, which sent him to the hospital. There he was diagnosed with COVID-19. Because he takes on most of the…
A diagnosis of familial amyloid polyneuropathy (FAP), or the onset of peripheral neuropathy symptoms, may cause patients to worry about missing out on the activities they enjoy. Spending time with family, hosting, cooking, and…
The companionship of dogs and other pets may benefit patients by helping them cope as they manage the symptoms of familial amyloid polyneuropathy (FAP). But depending on when the pet becomes part of the family, its presence may…
As I mentioned in my last column, my mother-in-law’s peripheral neuropathy symptoms seemed to take a turn for the worse in April. At the same time, my wife and I were experiencing additional life changes with the…
The past month was challenging for my family. My wife and I were expecting the birth of our new child at any moment, according to my wife’s symptoms and her doctors’ words. But at the same time, my mother-in-law…
March signals a change in seasons, often accompanied by a change in temperatures. Caregivers of patients with familial amyloid polyneuropathy (FAP) must be mindful of the transition from cold temperatures to warmer ones. My mother-in-law’s peripheral…
Author’s note: I received no compensation for writing about the following products. I just really like shoes. My mother-in-law suffers from peripheral neuropathy pain due to familial amyloid polyneuropathy, or FAP. This pain requires her to move…
My mother-in-law, who has familial amyloid polyneuropathy (FAP), often experiences tingling and burning sensations as well as pain in her hands and feet. Because of that, she must keep them covered at all times. This is the…
Starting in late November and often lasting through March, the cold weather in much of the U.S. can be a burden for many patients with familial amyloid polyneuropathy (FAP). Those living on the East Coast or in the…
A few months ago, I learned something new about my wife’s side of the family as we celebrated Thanksgiving. My mother-in-law suffers from familial amyloid polyneuropathy (FAP), which I already knew. But my wife’s grandmother told me that…
Holiday travel reminds my family just how important a wheelchair-accessible van is for transporting my mother-in-law, who has familial amyloid polyneuropathy. It can be difficult for neuropathy patients and their caregivers to be home all the time, and…
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