• Traveling with Nerve Pain Symptoms
  • Eurordis Unveils Integrated-care Initiative for Rare Disease Patients
  • ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy
  • Late-onset FAP Associated with Misdiagnosis, Greater Severity, Brazilian Study Finds
  • Variants in C1QA and C1QC Genes Associated with Age at Onset in Portuguese Families
  • Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries
  • Here’s How Caregivers Can Adapt to the Acceptance Stage of Grief
  • #AANAM – Tegsedi Continues to Benefit FAP Patients for up to Two Years
  • New Caregivers Should Be Proactive When Dealing with Depression Risk
  • Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns
  • Addressing The Bargaining Stage of Grief as a Caregiver
  • Addressing Feelings of Caregiver Anger