• Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry
  • 3 FAP Therapies Win 2020 Prix Galien USA Awards for Best Biotechnology Product
  • Looking for Threads of Hope When Crisis Hits
  • Recreational Therapy for FAP
  • First ATTR Patient Dosed in Phase 1 Trial of Intellia’s Gene-editing Therapy NTLA-2001
  • Even Superheroes Have Sidekicks
  • NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits
  • Tips for Managing Stress When You Have FAP
  • Phase 3 Trial of Acoramidis in ATTR-CM Patients Fully Enrolled, Trial in FAP Underway
  • Keep Pushing and Persevering on the Rare Disease Journey
  • You Are Stronger Than You Think
  • TTR Variant,  E61K, That’s Not Prone to Clumping Seen to Cause FAP in Other Ways