• NORD’s Advice on COVID-19: You’re Stronger Than You Think
  • NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum
  • Global Rare Disease Group’s Focus: 1,000 New Therapies by 2027, Despite COVID-19
  • Paying Attention to Mental Health During Social Isolation
  • Long-term Vyndaqel Improves Survival in FAP, Study Suggests
  • Being Prepared: Neuropathy Patients, Social Distancing, and the Coronavirus
  • Pain High Among Quality of Life Hindrances in FAP, Study Finds
  • How Neuropathy Patients Can Cope with a Diagnosis
  • Alnylam Completes Enrollment for Phase 3 HELIOS-A Trial Testing Vutrisiran
  • Pediatric Rare Disease Therapies Increase, But Most Repurposed, Study Finds
  • Video: BioNews’ Social Media Campaign Highlights #WhatMakesMeRare
  • How Daylight Saving Time May Affect Neuropathy Patients
Video : Hear a physician’s perspective on the importance of no-cost, confidential genetic testing and learn more at hATTR Compass.
Video : Hear a physician’s perspective on the importance of no-cost, confidential genetic testing and learn more at hATTR Compass.