Sunrise Sunset – a Column by Jaime Christmas

persevering, stronger Jaime is a caregiver to her husband who is afflicted with the hereditary ATTR amyloidosis disease. Since his 2013 diagnosis, Jaime’s experience dealing with the effects of the disease on her husband and family have seen her go through many challenges in her vital role as caregiver. She’s required constant personal growth and flexibility to be successful in this complex, demanding, and stressful role. She is also the CEO and founder of the New Zealand Amyloidosis Patient Association, a not-for-profit charity formed in 2019 to promote and advocate for education, awareness, and treatment for patients and their families in New Zealand. Join her on this journey as she shares on the importance of being a caregiver, the role’s demands, how she’s risen above it all, and how everyone can do their part to ensure better outcomes for both the patient and caregiver’s health and well-being.

The Ups and Downs of Sleeplessness

Has the COVID-19 pandemic been keeping all of us up at night? According to an online forum by the Harvard T.H. Chan School of Public Health reported on by The Harvard Gazette, the pandemic has resulted in a big change to people’s sleeping habits, resulting in insomnia for many.

Finding Meaning in Life With a Genetic Disease

My husband Aubrey’s hereditary ATTR amyloidosis journey is included in a forthcoming book titled “Rare Disease Drug Development: Clinical, Scientific, Patient, and Caregiver Perspectives.” He feels very touched that the editor saw fit to reach out to him. Emotional healing occurs when we can provide insight into a…

I’m Embracing Optimism as We Approach the New Year

2021 has been a character-building year for me. I experienced challenges like never before, and I’m not just referring to the ones associated with the COVID-19 pandemic. This year, I suffered the loss of my mother, my beloved pet dog, and my sister-in-law. Just when I thought it couldn’t…