Rumination and Response - a Column by Ezekiel Lim

Ezekiel is caregiver to his mother-in-law, who has familial amyloid polyneuropathy. He holds a bachelor’s degree in strategic and organizational communications from Temple University and currently lives in Philadelphia, Pennsylvania. When not writing, he’s skateboarding or hanging out with his wife, Maryann.

Navigating the Turbulent Feelings of Caregiving

The onset of familial amyloid polyneuropathy forces daunting shifts in the relationships between caregivers and their loved one. When my mother-in-law was diagnosed with polyneuropathy, she began to despair of life itself. Her sensitivity to touch made things that were once part of everyday life, such as hugging, nearly impossible.