“I love you. If anything happens to me, you know where I keep the account details.” My husband uttered these parting words as I dropped him off for admittance into the hospital in April. His severe fluid retention had caused his feet and abdomen to balloon up while his…
My husband lives under the banner of his disease. This may sound hard-hitting, but it is the fact of the matter. The sooner carers appreciate that hereditary amyloidosis may transform their loved one into someone else, the better they will adapt to their altered relationship with each other. I say…
My laptop reads 3:37 a.m. I made the mistake of checking my work inbox when I should be asleep. There are times I become overzealous in my correspondence. I want to provide a solution for the people who contact me right then and there. Leading a patient association has its…
I turn 50 this November, and one of the key things I have learned is that we as human beings totally underrate our ability to overcome tough situations. I have yet to figure out why we keep falling for the belief that life is all about success. (Check back when…
Part of the work needed to ensure the overall well-being of neuropathy patients is to help them manage their moods and let them know that they are supported. Increased serotonin may help patients with peripheral neuropathy symptoms associated with familial amyloid polyneuropathy, chronic inflammatory demyelinating polyneuropathy, or diabetic…
May 2020 has arrived, introducing warmer temperatures and beautiful days — the spring season, a great time to be outside. When it’s not raining, warmer temperatures and sunlight may increase serotonin and boost mental health. However, many neuropathy patients suffer severe consequences from the rising heat.
Staying positive and maintaining mental health may be challenging during self-quarantine. For neuropathy patients, whether they have diabetic neuropathy, familial amyloid polyneuropathy, or chronic inflammatory demyelinating polyneuropathy, it may be difficult to venture outdoors for exercise or running errands. While staying indoors and at a distance…
Patients with peripheral neuropathy symptoms must practice caution when managing underlying symptoms by conferring with their doctors. One nerve damage treatment strategy to discuss with a doctor is vitamin supplementation to support a formal treatment plan. Vitamins known for treating symptoms of peripheral neuropathy may be found…
The COVID-19 pandemic has surged to unprecedented levels. Since last week’s column, many schools, workplaces, and public gatherings have been placed on hold. For familial amyloid polyneuropathy patients and anyone who suffers from peripheral neuropathy, this stressful time may present an opportunity to maintain positive mental health…
By now the virus that causes COVID-19 has expanded to numerous countries, causing a global crisis. Because older people and those with preexisting health conditions are at a higher risk of getting sick due to the virus, it is important for patients with familial amyloid polyneuropathy…