“I love you. If anything happens to me, you know where I keep the account details.” My husband uttered these parting words as I dropped him off for admittance into the hospital in April. His severe fluid retention had caused his feet and abdomen to balloon up while his…
My husband lives under the banner of his disease. This may sound hard-hitting, but it is the fact of the matter. The sooner carers appreciate that hereditary amyloidosis may transform their loved one into someone else, the better they will adapt to their altered relationship with each other. I say…
My laptop reads 3:37 a.m. I made the mistake of checking my work inbox when I should be asleep. There are times I become overzealous in my correspondence. I want to provide a solution for the people who contact me right then and there. Leading a patient association has its…
I turn 50 this November, and one of the key things I have learned is that we as human beings totally underrate our ability to overcome tough situations. I have yet to figure out why we keep falling for the belief that life is all about success. (Check back when…